After being inundated with what feels like an encyclopedia’s worth of information on Autism over the past two weeks, I was wondering about the GFCF diet (aka no gluten, no dairy) for Knox. Some people swear by it, though most doctors/ professionals I speak with have only seen a handful of kids respond to it. I decided to start slowly and switch Knox from cow’s milk to soy milk, just to see. Well, if ever there was a horrible plan, that would be it.
Knox LOVES milk. He drinks it three times a day, and will always request it with a happy “PWEEE!” (please). I made the switch and started giving him Silk Fruit & Protein last week. He really liked it and drank it with no complaints. A few days in, I noticed a change for the worse in him. He was completely out of it all week last week. He barely made eye contact, very uninterested in interaction, he was making a noise in the back of his throat (he does this when his throat hurts) and kept scratching at his eyes. It finally hit me that the soy milk was bothering him. He was even starting to cry for no reason randomly throughout the day. He obviously did not feel well. Then, I noticed the tell-tale food allergy diaper rash, and knew my suspicions were correct.
I immediately switched him back to normal milk and saw a difference right away. I talked to our pediatrician, and he agreed that it sounds like a food allergy. Trevor is also allergic to soy, though as an adult, he does not have to avoid it, but he is technically allergic to it, so Knox does have a predisposition to this particular allergy. I have decided to take Knox off of soy completely, and man alive, there is soy in EVERYTHING! Many of his favorites, including his organic cereal bars that are a breakfast staple, have soy in them.
Just one day into his soy-free diet, he seems so much happier. It seems that some of his Autism symptoms were worsened when on an increased level of soy, so I am hoping that some will decrease when it’s eliminated totally. This morning, I was greeted with lots of direct eye contact and a much happier boy. We plan on having Knox allergy tested sometime soon, but we’re focusing on getting him in with the developmental pediatrician (who is not accepting new patients… until I call them 500 times a day and beg, perhaps) before doing something invasive and stressful to him.
He was feeling much better yesterday and even chose to interact with Brody several times- this is a rarity, and we were loving watch them play together. Brody acted like he’d won the lottery- he adores Knox and was even permitted to touch Knox’s hand several times, ha ha! Here is photographic evidence that Knox does, in fact, love his brother (and me… he’s pulling my shirt to get me to lay with them!):